CORDIS Project
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This project focuses on creating a patient-centered care pathway for individuals with Huntington's Disease. It aims to leverage Connected Health technologies to enhance self-management and reduce social isolation.
HD is a monogentic disease, meaning modification in a single gene occurring in all cells of the body.
In Western countries it is estimated that 5-7 people per 100,000 are affected by HD.
Currently there is no cure for the disease and effective management is key to quality of life for those who are affected.
Patients and families who are living with the disease face multiple social and self-management issues.
For example, stigma of the disease alongside social isolation have been key drivers in t…
UNIVERSITY COLLEGE DUBLIN, NATIONAL UNIVERSITY OF IRELAND, DUBLIN
Partner organizations (coordinator is shown above), with normalized type and CORDIS activity type. Guests see up to 4 partners.
United Kingdom, Reading
Type: University / higher education
Activity type: Higher or Secondary Education Establishments
SME: No
COMTRADE SOFTWARE SOLUTIONS LLC
Slovenia, Ljubljana
Type: Company (for-profit)
Activity type: Private for-profit entities (excluding Higher or Secondary Education Establishments)
SME: No
Ireland, Dublin
Type: Company (for-profit)
Activity type: Private for-profit entities (excluding Higher or Secondary Education Establishments)
SME: No
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