CORDIS Project
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HemaFAIR aims to enhance research on rare hematological diseases by promoting data sharing and collaboration. The project focuses on training and networking to improve the scientific landscape in Cyprus and facilitate better access to care and treatment for patients.
Research on rare diseases (RDs) is scarce and fragmented in the EU, leading to delayed diagnoses, limited availability of medicinal products and challenging access to care.
Like in most RDs, data-driven research on rare haematological diseases (RHDs) is affected by the lack of data standardisation and the fragmentation of available data in close repositories.
Adhering to the principle of making data findable, accessible, interoperable and reusable (FAIR) is pivotal in fostering collaborative res…
THE CYPRUS FOUNDATION FOR MUSCULAR DYSTROPHY RESEARCH CYRUS INSTIT OF NEURO & GENETICS
KYPRIAKO IDRYMA EREVNON GIA TI MYIKI DISTROFIA
Partner organizations (coordinator is shown above), with normalized type and CORDIS activity type. Guests see up to 4 partners.
Italy, Valenzano Bari
Type: Research institute
Activity type: Research Organisations
SME: No
Netherlands, Amsterdam
Type: Research institute
Activity type: Research Organisations
SME: No
Leiden University Medical Center
Netherlands, Leiden
Type: University / higher education
Activity type: Higher or Secondary Education Establishments
SME: No
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